When I was say in my 30's my husband and I found it amusing when the man down the street couldn't participant in anything on Wednesdays because it was "Doctor Day" . I mean how long does it take?!
Well I get that now that I have cancer. My trips to Moffitt Cancer Center (an hour away) are that way. Take yesterday, I had appointments at Moffitt, arrive to have an IV started then drink the nasty cocktail needed for the CT scan, which takes 90 minutes to complete for a 10 minute scan. Then to the blood draw area so they can take multiple tubes for testing. Then go to see the Doctor. Sounds simple right? Well add in rain, which makes everyone late,( Fresh Florida transplant people can't drive when it rains) so that in turn makes my scan delayed by 30 minutes. But I still get to my 2pm blood draw on time - amazing! Only to discover that 2 of the thyroid tests that I wanted ordered were not on the list, they have to call the doctor, which by the way is right next door in the same building, this creates another delay, but again I am at my appointment with the doctor on time at 2:45. Waiting, waiting, waiting.... he finally comes in and takes just as much time with me as he had taken with the people before me. Answers all my questions, goes over my scans carefully with me.
Well it wasn't the news I wanted to hear No Evidence of Disease, but it wasn't all bad. Some of the metastasis had shrunk, stabilized or disappeared, however there was one new growth. Insert big sigh here... My options are explained, continue with the current treatment, try a new medicine, or do nothing. While continue with the same treatment was offered, my doctor felt I had used as much of the High Dose Interleukin 2 that my body could take. Down to 2 options. I chose Sutent, the medicine. I start that this week. And to top that off, the thyroid is pretty much dead now I now will begin new doses of medicine for that.
The option of "doing nothing" felt, well, like doing nothing. I wasn't ready for that yet....at least I don't think so. On the other hand taking strong drugs make me crazy, like I really don't want to take anything - ever.
It wasn't an easy decision, and I second guess my self still today.
Well all said & done at Moffitt, I was starving since I last ate breakfast at 7:30am, we stopped for dinner at Applebee's and made it home at 8:30pm what a day!
Doctor day indeed.
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